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Feb 25 2013

PatientsLikeMe Project Pioneers Use of Outcomes Data That Are Meaningful To Patients

Feb 25, 2013, 12:33 PM, Posted by Pioneer Blog Team

Jamie Heywood Jamie Heywood
Paul Tarini Paul Tarini

RWJF has awarded PatientsLikeMe a $1.9 million grant to create the world’s first open-participation research platform to develop patient-centered health outcomes. The new platform will be linked with the PatientsLikeMe network to help researchers develop health outcome measures that better reflect patients’ experiences with a disease, and assess health and quality of life in ways that matter to patients.

Jamie Heywood, co-founder of PatientsLikeMe, and Paul Tarini, senior program officer of the Pioneer Team at RWJF, share their views on why creating an open-access platform to develop measures that matter to patients could advance meaningful treatments that improve health and advance research.

Why is this a pioneering project?  What makes it novel? 

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Oct 4 2012

Believing in Design: Return to Mayo Transform

Oct 4, 2012, 3:46 PM, Posted by Al Shar

Al Shar Al Shar

How can design affect health and the delivery of care? Last year I and a group of Pioneer's guests interested in Project ECHO went to Mayo Clinic’s Center for Innovation Transform Symposium without knowing much about the conference's focus of design and innovation in health. I entered as a skeptic but left a believer. This year, Pioneer brought no guests but we did provide funding so that a number of students in the design, pre-medical, and medical professions could attend.

What do I mean by design? You might think that design doesn’t have a place in delivering innovative health care. Design is predicated on understanding the way people and the environment react to how solutions are packaged and presented. This is critical in the acceptance and ultimate success of health care solutions, and successful outcomes are an essential health care goal.

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