Empowering Patients
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Transparency, public reporting, and new models of patient-centered care could help patients reach better outcomes, at lower cost.
E-Patients
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White Paper Describes How "E-Patients" Using Internet Resources are Transforming the American Health Care System
March 1, 2008 | Program Result Report
Tom Ferguson, M.D., a pioneer in the field of online health, worked with a group of researchers, developers and leaders in the field to develop a white paper on e-patients and their impact on health care and medicine.
PatientsLikeMe
February 25, 2013 | Grantee
PatientsLikeMe is an established network for patients who want to monitor their health, improve their outcomes, and contribute to medical research and discovery.
PatientsLikeMe Calls For Researcher Participation in New Open Research Exchange™ Platform
May 20, 2013 | News Release
PatientsLikeMe names scientific advisory board for world's first open-participation research platform for patient-centered health outcome measures
RWJF Awards $1.9 Million Grant to PatientsLikeMe to Create World’s First Open Research Platform to Develop Patient-Centered Health Outcome Measurements
February 25, 2013 | News Release
PatientsLikeMe has been awarded a $1.9 million grant from RWJF to create the world's first open-participation research platform for the development of patient-centered health outcome measures.
PatientsLikeMe Project Pioneers Use of Outcomes Data That Are Meaningful To Patients
February 25, 2013 | Pioneering Ideas Blog Post
Jamie Heywood, co-founder of PatientsLikeMe, and Paul Tarini, senior program officer of the Pioneer Team at RWJF, share their views on creating an open-access platform to develop measures that matter to patients.
Advancing the Field of Health Games
March 31, 2011 | Program Result Report
Progress and lessons learned from two programs that seek to advance the impact digital games can have on health.
Better Data = Better Health: Farzad Mostashari Q&A
Story
A Conversation with Farzad Mostashari, National Coordinator for Health Information Technology, U.S. Department of Health and Human Services.
Advancing the Role of Rapid Learning in Mainstream Health Care
March 25, 2013 | Program Result Report
Developing and promoting a rapid-learning health system, in which health information in large databases is analyzed to improve health care - the work of Lynn Etheredge and the Health Insurance Reform Project at George Washington University.
A Patient's View of OpenNotes
October 2, 2012 | Journal Article
The authors discuss the positive outcomes from a year-long experimental study, OpenNotes, where patients could access their doctor’s notes.