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Genetic Disorders

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  • Topic: Genetic disorders
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Supplementing a CD-ROM to Educate Physicians and Students about Current Genetic Testing Technology

March 1, 2005 | Program Result

Project staff at the Stanford University Center for Biomedical Ethics created supplementary material to enhance the use of a CD-ROM to teach genomics and genetics to undergraduate science students.

Public Opinion Survey Finds Racial and Ethnic Differences Regarding Genetic Testing

October 1, 2005 | Program Result

The University of Michigan Institute for Social Research conducted a national survey on Americans' knowledge, attitudes, values and behavior regarding genetic testing and compared results to public opinion surveys from 1990.

Sun Valley Forum Shines the Light on Advances in Molecular Medicine

December 1, 2001 | Program Result

The Sun Valley Forum on National Health held a conference on August 3-7, 1997, in Sun Valley, Idaho, to review and discuss the implications of advances in molecular medicine for the improvement of health and health care.

Broadcasting the Word on Advances in Genetics to Public Health Practitioners

March 1, 2001 | Program Result

The March of Dimes Birth Defects Foundation organized two meetings of the Genetics Awareness Coalition.

Patients with Genetic Disorders Seek Improved Services from Managed Care Organizations

January 1, 1999 | Program Result

The Alliance of Genetic Support Groups (now the Genetic Alliance) held a dialog meeting to develop relationships with managed care organizations with the aim of improving their genetic services delivery.

Low Grade for Medical Community's Preparation for Genetic Testing

June 1, 1998 | Program Result

This project surveyed HMO medical directors to determine the extent of requests and coverage for predictive genetic testing for three common adult-onset disorders and Huntington's disease.

Pilot Program of Research to Integrate Substance Abuse Issues into Mainstream Medicine (PRISM)

October 15, 2009 | Program Result

PRISM sought to encourage physicians and health care researchers to address the effects of alcohol and drug abuse on serious chronic illnesses.

Researchers Generate Reports and Online Info on Ethical and Legal Issues of Genetics

July 1, 2005 | Program Result

From 2001 to 2003, a California-based research group, the Institute for the Future, used two exploratory grants from the Robert Wood Johnson Foundation (RWJF) to assess health care decision-makers' knowledge about new discoveries in genetics and to develop two proposals for a major educational initiative to inform health care leaders about the new discoveries, their clinical applications and the legal and ethical issues surrounding them. In 2002, RWJF turned down the two proposals partly bec...

Online CME Program Integrates Genetics Into Primary Care Practices

December 1, 2005 | Program Result

The March of Dimes Birth Defects Foundation designed, launched and evaluated Genetics & Your Practice Online, an information and continuing education program to help health professionals integrate genetics into their practices.

Health Professionals Learn to Unravel Genetics for Their Patients

July 1, 2004 | Program Result

The American Nurses Foundation established the National Coalition for Health Professional Education in Genetics, an interdisciplinary group that brings together organizations to promote health professional education in the area of human genetics.

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