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Genetic Disorders

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  • Topic: Genetic disorders
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Supplementing a CD-ROM to Educate Physicians and Students about Current Genetic Testing Technology

March 1, 2005 | Program Result Report

Project staff at the Stanford University Center for Biomedical Ethics created supplementary material to enhance the use of a CD-ROM to teach genomics and genetics to undergraduate science students.

Public Opinion Survey Finds Racial and Ethnic Differences Regarding Genetic Testing

October 1, 2005 | Program Result Report

The University of Michigan Institute for Social Research conducted a national survey on Americans' knowledge, attitudes, values and behavior regarding genetic testing and compared results to public opinion surveys from 1990.

Sun Valley Forum Shines the Light on Advances in Molecular Medicine

December 1, 2001 | Program Result Report

The Sun Valley Forum on National Health held a conference on August 3-7, 1997, in Sun Valley, Idaho, to review and discuss the implications of advances in molecular medicine for the improvement of health and health care.

Broadcasting the Word on Advances in Genetics to Public Health Practitioners

March 1, 2001 | Program Result Report

The March of Dimes Birth Defects Foundation organized two meetings of the Genetics Awareness Coalition.

Kaiser Permanente "Biobank" Receives $25-Million Grant from National Institutes of Health

October 12, 2009 | News Release

New platform for cross-researching genetic, health, environmental data could lead to better treatments, new ways to prevent illness.

Researchers Generate Reports and Online Info on Ethical and Legal Issues of Genetics

July 1, 2005 | Program Result Report

From 2001 to 2003, a California-based research group, the Institute for the Future, used two exploratory grants from the Robert Wood Johnson Foundation (RWJF) to assess health care decision-makers' knowledge about new discoveries in genetics and to develop two proposals for a major educational initiative to inform health care leaders about the new discoveries, their clinical applications and the legal and ethical issues surrounding them. In 2002, RWJF turned down the two proposals partly bec...

Online CME Program Integrates Genetics Into Primary Care Practices

December 1, 2005 | Program Result Report

The March of Dimes Birth Defects Foundation designed, launched and evaluated Genetics & Your Practice Online, an information and continuing education program to help health professionals integrate genetics into their practices.

PBS Program Addresses Practical and Ethical Issues of Genetic Technology

December 1, 2004 | Program Result Report

Fred Friendly Seminars, in association with Thirteen/WNET, produced a three-part series called Our Genes/Our Choices, which the Public Broadcasting Service (PBS) premiered nationally in January 2003 to some 2.3 million viewers.

Web Tool for Gathering Family Health History Performs Better Than Usual Methods

September 1, 2003 | Program Result Report

From 1998 through 2002, researchers at the University of Virginia Health Sciences Center developed and pilot tested a Web-based tool for collecting family health history.

Decoding the Human Genome Raises New Questions, Practical and Ethical

May 1, 2001 | Program Result Report

The State of Arizona Department of Health Services held a conference on the future impact of advances in genetics. "Genetics in the 21st Century: Crisis and Opportunity" took place May 12-14, 1999, in Mesa, Ariz.

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