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Genetic Disorders

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  • Topic: Genetic disorders
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What's at Stake?

September 1, 2011 | Journal Article

This paper examines the impact of genetic testing and the potential benefits and harms it can provide to people with epilepsy and their family members.

Low Grade for Medical Community's Preparation for Genetic Testing

June 1, 1998 | Program Result Report

This project surveyed HMO medical directors to determine the extent of requests and coverage for predictive genetic testing for three common adult-onset disorders and Huntington's disease.

Pilot Program of Research to Integrate Substance Abuse Issues into Mainstream Medicine (PRISM)

October 15, 2009 | Program Result Report

PRISM sought to encourage physicians and health care researchers to address the effects of alcohol and drug abuse on serious chronic illnesses.

Decoding the Human Genome Raises New Questions, Practical and Ethical

May 1, 2001 | Program Result Report

The State of Arizona Department of Health Services held a conference on the future impact of advances in genetics. "Genetics in the 21st Century: Crisis and Opportunity" took place May 12-14, 1999, in Mesa, Ariz.

Physicians Express Interest in Using New Genetic Technologies

August 1, 2000 | Program Result Report

Johns Hopkins University School of Medicine explored the barriers and incentives to appropriate diffusion of genetic services into mainstream medicine and providers' willingness to participate in clinical studies.

Students Stand at the Crossroads of Science and Ethics

August 1, 1999 | Program Result Report

Student PUGWASH USA is a nonprofit national student organization that promotes increased awareness of the social and ethical aspects of science and technology through publications and meetings.

Knowledge of Genetics Deemed Essential for Primary Care Providers

May 1, 1997 | Program Result Report

The Banbury Center at the Cold Spring Harbor Laboratory convened two meetings to explore the implications for health care of advances in human genetics:

Ninety-Minute Video Educates Health Professional on the Role of Race and Genetics in Health Care

March 1, 2008 | Program Result Report

The National Coalition for Health Professional Education in Genetics produced and disseminated a 90-minute television program to educate health care professionals about the role of race and genetics in health care.

Fine-Tuning Drugs to Match Our Genes - What are the Implications for Health Care Costs and Treatments?

July 31, 2008 | Program Result Report

Pharmacogenomics is the study of how inherited variations in genes dictate a person's reaction to a drug. Louis F. Rossiter, PhD, and other researchers examined how pharmacogenomics fits within the current health care market.

Researchers Generate Reports and Online Info on Ethical and Legal Issues of Genetics

July 1, 2005 | Program Result Report

From 2001 to 2003, a California-based research group, the Institute for the Future, used two exploratory grants from the Robert Wood Johnson Foundation (RWJF) to assess health care decision-makers' knowledge about new discoveries in genetics and to develop two proposals for a major educational initiative to inform health care leaders about the new discoveries, their clinical applications and the legal and ethical issues surrounding them. In 2002, RWJF turned down the two proposals partly bec...

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