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April 20, 2009 | Program Result Report
Mathematica Policy Research conducted three focus groups with African Americans and Latinos to gauge their knowledge of and thoughts about personal health records.
October 29, 2012 | Program Result Report
Researchers at Western Health Information Network demonstrated the technical feasibility of using a voluntary universal health care identifier card to link each person with their health record.
October 1, 2010 | Journal Article
Patients with online personal health records want to control access to their information in precise, detailed ways. But the system must be responsive and no more complex than necessary to provide. This paper details one data system method.
October 2, 2012 | Journal Article
The authors discuss the positive outcomes from a year-long experimental study, OpenNotes, where patients could access their doctor’s notes.
July 1, 2009 | Program Result Report
The Health Research and Educational Trust collected and integrated information on patients' race/ethnicity, primary language and socioeconomic status into an electronic health record system, and linked that information with clinical performance measures.
March 14, 2013 | Pioneering Ideas Blog Post
PBS NewsHour recently featured Pioneer grantee Kaiser biobank. In her blog post, Nancy Barrand shares how Pioneer first became involved with Kaiser's biobank.
October 1, 2010 | Journal Article
A Personal Health Application running on a tablet PC and using simple navigation, touch screens, and artifacts and workflows based on everyday life, can help older Americans and lay caregivers with limited computing experience manage medications, particularly during care transitions.
October 1, 2010 | Journal Article
This article evaluates the role of governance and stewardship in improving access to health care data. Data stewardship presents a possible solution to the struggle between privacy and access concerns about health care information.
February 1, 2012 | Commentary
Will OpenNotes help patients become true partners in their case?
October 1, 2008 | Journal Article
Researchers have been developing information and communication technologies (ICTs) to help diabetes patients keep track of what they eat. This study obtained feedback from patients who tested three new design concepts.