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Patient Concerns

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  • Topic: Patient concerns
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PatientsLikeMe Calls For Researcher Participation in New Open Research Exchange™ Platform

May 20, 2013 | News Release

PatientsLikeMe names scientific advisory board for world's first open-participation research platform for patient-centered health outcome measures

Weighing the Good and Bad of OpenNotes

March 26, 2013 | Human Capital Blog Post

OpenNotes is a digital tool with which a physician takes and stores the notes of every encounter with a patient.

Confusion Reigns: Cutting Through the Overload of Information on Cancer Prevention

March 15, 2013 | Human Capital Blog Post

Health & Society Scholar writes about research on how Americans make sense of information on the causes of cancer and ways to prevent it.

RWJF Awards $1.9 Million Grant to PatientsLikeMe to Create World’s First Open Research Platform to Develop Patient-Centered Health Outcome Measurements

February 25, 2013 | News Release

PatientsLikeMe has been awarded a $1.9 million grant from RWJF to create the world's first open-participation research platform for the development of patient-centered health outcome measures.

PatientsLikeMe Project Pioneers Use of Outcomes Data That Are Meaningful To Patients

February 25, 2013 | Pioneering Ideas Blog Post

Jamie Heywood, co-founder of PatientsLikeMe, and Paul Tarini, senior program officer of the Pioneer Team at RWJF, share their views on creating an open-access platform to develop measures that matter to patients.

PatientsLikeMe

February 25, 2013 | Grantee

PatientsLikeMe is an established network for patients who want to monitor their health, improve their outcomes, and contribute to medical research and discovery.

Scholar’s Website Prepares Patients to Make Complex Medical Decisions

February 11, 2013 | Human Capital Blog Post

PrepareForYourCare.org is a free, easy-to-use online resource that guides patients through all the steps of advance care planning.

Highlights of the Final Omnibus HIPAA Rule

January 30, 2013 | Issue Brief

This brief details changes to the federal rule implementing modifications to the Health Insurance Portability and Accountability Act (HIPAA).

Chronic Pain Teaches RWJF Scholar a Lesson in Listening

January 10, 2013 | Story

John Pederzolli triumphs over a decade of chronic—but preventable pain—and brings the lessons he learned to the nursing profession.

Grantee Invention Eases Stress for Children Battling Leukemia

December 6, 2012 | Story

An idea born out of the frustrations of a precocious toddler and a concerned mom helps hundreds of kids.

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