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December 1, 2010 | Journal Article
A study of adolescents' privacy preferences in a health care setting found that adolescents value psychological, social, physical and informational privacy, and recommended that providers consider all aspects of privacy when caring for adolescents.
March 25, 2013 | Program Result Report
Developing and promoting a rapid-learning health system, in which health information in large databases is analyzed to improve health care - the work of Lynn Etheredge and the Health Insurance Reform Project at George Washington University.
October 2, 2012 | Journal Article
The authors discuss the positive outcomes from a year-long experimental study, OpenNotes, where patients could access their doctor’s notes.
October 1, 2010 | Journal Article
This article examines issues of privacy and utility in health services research. While the availability and complexity of data have increased in recent years, privacy concerns have limited researchers’ ability to fully utilize these sources of information.
November 10, 2009 | Program Result Report
Can the emerging technology of reality mining - which involves inferring human relationships and behavior by measuring physical and social activity - be used to improve public health and medicine?
October 31, 2011 | Story
Leaders' Link e-Newsletter: September/October 2011.
December 2, 2008 | Program Result Report
Connecting for Health works with more than 100 collaborators from government, health care, industry and consumer groups to establish policy guidelines and technical solutions to pave the way for nationwide electronic health information exchange.
February 1, 2012 | Commentary
Will OpenNotes help patients become true partners in their case?
April 13, 2012 | Journal Article
The authors conducted a one-year, multi-site trial of patient-accessible online office visit notes system OpenNotes, and found that many primary care physicians were willing to participate.
January 27, 2011 | Program Result Report
The Health Insurance Reform Project advanced the development of a rapid learning health system - involving millions of health records in searchable national databases - to fill knowledge gaps about health care and develop better health care policies.