Patient Interest in Sharing Personal Health Record Information
December 20, 2011 | Journal Article
A large-scale study of veterans suggests that most PHR users are interested in sharing access to their electronic health records.
Privacy and Confidentiality
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Many Physicians Failing Social Media 101
March 28, 2012 | Story
State medical boards report an increase in reports of doctors behaving badly online. A grantee works to identify problems and develop Internet guidelines for medical professionals.
Violations of Professionalism Online a Growing Concern for Physicians, Patients
March 20, 2012 | News Release
Violations of online professionalism are prevalent among physicians, according to a study conducted by RWJF Clinical Scholars.
In the Media: Group Helps Nurses Navigate New Social Media Terrain
February 26, 2012 | Story
Educate nurses about the importance of patient privacy in an era during which social media use is exploding.
Patients Ready to Share Information
December 19, 2011 | Story
Related websites RWJF Clinical Scholars RWJF Scholars, Fellows and Leadership programs A survey of patients who use an electronic system to manage their personal health information found that most would like to share access to this system with other ...
The Michigan BioTrust for Health
March 1, 2011 | Journal Article
The Michigan Department of Community Health (MDCH) stores almost 4 million dried blood spot specimens (DBS) in the Michigan Neonatal Biobank. DBS are collected from newborns under a mandatory public health program to screen for serious conditions.
Communications Corner
October 31, 2011 | Story
Leaders' Link e-Newsletter: September/October 2011.
Balancing Access to Health Data and Privacy
October 1, 2010 | Journal Article
This article examines issues of privacy and utility in health services research. While the availability and complexity of data have increased in recent years, privacy concerns have limited researchers’ ability to fully utilize these sources of information.
Promoting Greater Access to Health Information
March 1, 2009 | Issue Brief
The premiere issue of LegalNotes, an online Aligning Forces for Quality publication, provides an overview of the U.S. Department of Health and Human Services' guidelines for HIPAA's Privacy Rule.
Reconciling Privacy Laws and Public Health Surveillance
May 28, 2009 | Program Result
The Council of State and Territorial Epidemiologists provided guidance to help public health practitioners understand how privacy laws at the federal, state and local level, affect the performance of essential public health activities.