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Privacy and Confidentiality

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  • Topic: Privacy and confidentiality
  • Topic: Patient-centered care/family-centered care
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A Patient's View of OpenNotes

October 2, 2012 | Journal Article

The authors discuss the positive outcomes from a year-long experimental study, OpenNotes, where patients could access their doctor’s notes.

Pushing the Envelope of Electronic Patient Portals to Engage Patients

October 2, 2012 | Journal Article

This editorial discusses OpenNotes, an experiment where patients were allowed to access their primary care providers’ electronic notes via patient portals.

Inviting Patients to Read Their Doctors' Notes

October 2, 2012 | Journal Article

This article could help drive a culture of more transparency between patients and providers, enabling two-way communication that levels the proverbial playing field.

Debate

February 1, 2012 | Commentary

Will OpenNotes help patients become true partners in their case?

Open Notes

July 20, 2010 | Journal Article

This article profiles a program that allows patients open access to their medical records. The OpenNotes project has the potential to open a new type of communication between patients and doctors.

Patients Reveal a Willingness to Trade Hands-On Medical Care for Computer Consultations

May 18, 2009 | News Release

Study also finds that Internet-savvy consumers will trade some privacy to gain transparency, full access to medical records

Promoting Greater Access to Health Information

March 1, 2009 | Issue Brief

The premiere issue of LegalNotes, an online Aligning Forces for Quality publication, provides an overview of the U.S. Department of Health and Human Services' guidelines for HIPAA's Privacy Rule.

Advancing the Role of Rapid Learning in Mainstream Health Care

March 25, 2013 | Program Result Report

Developing and promoting a rapid-learning health system, in which health information in large databases is analyzed to improve health care - the work of Lynn Etheredge and the Health Insurance Reform Project at George Washington University.

Incubating Innovation in U.S. Health Care Policy

January 11, 2012 | Story

Lynn Etheredge's Ideas Facilitate Policy to Improve Quality and Reduce Costs.

Rethinking the Power and Potential of Personal Health Records

January 1, 2009 | Report

This report from Project HeathDesign captures key learnings from the work of the program's first nine grantee teams, as well as from its efforts to develop a common platform and explore the ethical, legal and social issues tied to next-generation personal health records (PHRs).

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